Disabled Parenting Project Message Boards › New to DPP, Greetings.!
April 24, 2016 at 2:23 pm #668
Hello I am new to this site I’m quite happy to have discovered it. I am now a single parent of 3 young men ages 24, 27, and 14. I acquired degenerative disc disease at the age of 23 it progressed rapidly in my thirties. I’ve had multiple surgeries on my spine including a failed lumbra fusion, I also developed psoriatic arthritis which was discovered after I my spine was fused. MsMonkeyFeet refers to the deformities PA is causing in my feet(it’s also attacking every joint in my body). I live in constant poorly managed pain. This is due to allergies and not my pain doctor.
I wish I had a site or resource like this many years ago. My disabilities and pain have impacted every aspect of my life but especially my parenting. It’s amazing how some other parents react to a disabled parent. The isolation can be heartbreaking but I don’t think anything hurts me as much seeimg how my disabilities have impacted my children’s lives. From not being able to drive them anywhere to not having money for a senior trip it seems I’m always disappointing them.
My youngest son was born with a congenital heart defect just before my back problems became acute, he had 3 open heart surgeries before he was 4. Luckily he’s doing well and knock on wood hasn’t had any major issues, he will always struggle with stamina but is otherwise healthy. Eventually he may need a new heart as he only has one ventricle doing all the work for his but we hope that is years from now. My 17 year old struggles with attention deficit and cyclothymic disorder ( a cognitive disorder similar to bipolar but with Rapid Cycling of moods). I know his symptoms started before I became disabled but I can’t help wondering if it has become worse because of me. You never think of the challenges until they become challenges like when your son is caught out past curfew and you can’t drive to go get him; the only people you have to count on are your elderly parents.
This did not go where I thought it would go. But I’ve always loved writing and on a positive note I have returned to school, I’m doing an online program to finish my degree and brush up on my writing skills. I hope to finish a book I started. Perhaps thread coupd be an introductory thread for new people. I don’t how that works. I certainly hope that many find this site and it evolved into something wonderful for parents and prospective parents with disabilities.
April 27, 2016 at 6:45 am #673
- This topic was modified 1 year, 9 months ago by MsMonkeyFeet.
Thanks for joining the DPP and sharing your story!
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