As a disabled mother, I can’t help but reflect sometimes on my own entrance into the world. As a member of several online (primarily nondisabled) parenting groups, I find myself triggered by social media posts about babies born disabled or young … Read More about An Open Letter to Mothers of Disabled Children
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Why I Can’t Hold Other People’s Babies
It has been an emotional week. On Wednesday, I went to my 4-year-old daughter’s preschool to talk to three of the classrooms about my disability. I’ve done this before when my son was in preschool. It went pretty well – my daughter accompanied me to … Read More about Why I Can’t Hold Other People’s Babies
Mindfulness In Chronic Illness
Throughout my childhood and early adulthood, I never gave much thought to mindfulness. Even during my short foray into Soto Zen Buddhism in my late teens, staying present, being aware of my body, emotions and mentality didn’t seem like something I … Read More about Mindfulness In Chronic Illness
The “Mommy Guilt” When You Have a Child With a Rare Disease
Emergencies in my baby girl’s life were something of a biweekly event. Starting at about two months of age, I rushed my daughter to the Children’s ER often for gastric issues. These episodes consisted of her not being able to keep formula/food down, … Read More about The “Mommy Guilt” When You Have a Child With a Rare Disease